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Learning Disabilities

What is the LeDeR programme?

Families, the health service and others were worried why people with learning disabilities were dying younger than others who do not have learning disabilities.

NHS England asked the University of Bristol to set up a new study to record and think about why this was happening.

People with learning disabilities can die up to 25+ years earlier and not live as healthy as other people who do not have learning disabilities.

When people die, the University of Bristol, the local NHS and councils work together to review why they have died. This review process is called LeDeR (sounds like leader).

Hounslow Mortality Strategic Group

This multi-agency group meet every 4 months to look at the data submitted from local reviews, including areas of good practice and areas where improvements in practice could be made.

The Group ensure all learning is shared across Hounslow social services, Safeguarding Board, Hounslow CCG, Hounslow and Richmond Healthcare Trust and West London Health Trust.

  • Terms of reference
  • Action plan

Hounslow LeDeR learning from deaths event – 15 November 2019

This event held in Hounslow was attended by residents with learning disabilities and their families and carers and representatives from social care and health. 

  • National picture
  • Local learning
  • What it is like to do a LeDeR Review
  • Film about having a health check
  • What next?
  • Film of the event

 Hounslow LeDeR Programme Newsletter

  • Issue 1 – Date.

LeDeR reports

  • NW London LeDeR Annual Report 2019-2020
  • NW London LeDeR Annual Report 2019-2020 easy read version
  • The LeDeR Programme’s 2019 Annual Report
  • The LeDeR Programme’s 2019 Annual Report easy read version
  • LeDeR Action from Learning Report
  • LeDeR Action from Learning Report easy read version

 Notify a death to the LeDeR Team: Anyone can notify the LeDeR Team of a death,

either online: http://www.bristol.ac.uk/sps/leder/notify-a-death/ or by telephone: 0300 777 4774

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